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Write Your Rights

Region

Global

Programme Summary

The Write Your Rights campaign is an open and participatory consultation process to develop the PLHIV Charter for HIV Care to articulate the rights and responsibilities of people living with HIV/AIDS (PLHIV). To mark International Women's Day (March 8) 2009, women living with HIV around the world launched this global advocacy initiative through the guidance of Delhi Mahila Samiti (DMS) [in English: Women's Forum of Delhi Network of Positive People - DNP+] with support from the World Care Council. The women invited their comrades and peers - men and women alike - from around the world to participate in the collective drafting of a charter that: synthesises values, principles, and aspirations that are globally shared by PLHIV, includes elements of related rights-based documents, and establishes the international standard of care that should be attained in all countries. Initiated and developed by PLHIV from around the world, the Charter aims to make the relationship with health care providers a mutually beneficial one, with improving the quality of care as the common cause.

Communication Strategies

The PLHIV Charter aims to outline the fundamental elements for building an equitable and effective system of care, from the perspective of those in need. The Charter will also serve to foster partnerships, bringing PLHIV and health professionals together to better collaborate in the global fight against HIV/AIDS through implementation of these best practices in local communities, and to inspire a new sense of participation, inter-dependence, and shared responsibilities for the well-being of the HIV community. It is meant to be a dignified expression of common cause that amplifies the voices of those who have a lifesaving interest in improving the standards of care, that empowers individuals with the disease through this knowledge, and that increases the understanding of affected families and communities.

A short first draft edition, drawn from existing rights-based documents and initial contributions, outlines rights and responsibilities in different categories. For instance, under the rubric of "Information" is this list: information about available care services; be informed about condition, treatment, and options; know drug names, dosage, side effects, and adherence; access to your medical records in your local language; and peer-support and voluntary counselling. Organisers have extended a "call to action" seeking additions, comments, and suggestions - either by email (see below) or through an online comment process - that will be synthesised and incorporated into the next version. Each of the planned six drafts during 2009 welcomes further input. A series of "Outreach for Input" meetings will be held during 2009 in diverse cities around the world to further encourage the participation of individuals and organisations on the ground. Every two months, the latest updated draft version of the PLHIV Charter will be made widely available for further input.

A final edition will be launched on World AIDS Day in December 2009, with the anticipated endorsement of the World Health Organization (WHO), Joint United Nations Programme on HIV/AIDS (UNAIDS), the Global Fund, and other international institutions. Organisers stress that, "While the final version of the Charter will seek the endorsement of the WHO, UNAIDS, Governments and civil society organizations, and aims to serve as a tool for raising the standards of care, the open process of outreach for inputs to each draft version of the PLHIV Charter is as important as the finished document itself." The PLHIV Charter will then be made available broadly, to the end of providing activists with an advocacy tool to drive its implementation in many countries around the world.

Development Issues

HIV/AIDS, Rights.

Key Points

Established in 2005, World Care Council is a non-governmental organisation (NGO) registered in India, France, and the Democratic Republic of Congo, that strives to raise the standards of care for people with tuberculosis, HIV/AIDS, and malaria. Driven by people living with HIV and/or TB, the World Care Council advances a rights and responsibilities approach to confronting pandemics, and practices the principle of greater and more meaningful involvement of people with the diseases. The World Care Council's twin-track strategy involves developing or influencing policy in international bodies such as the WHO and the Global Fund, and then initiating projects on the ground in communities in high-burden countries to implement these guidelines.

Partners

World Care Council, DMS.

Source

March 16 2009 Call to Action, sent from World Care Council's Outreach for Input to The Communication Initiative; and World Care Council website, September 2 2009.


Placed on the Communication Initiative site September 02 2009
Last Updated September 02 2009



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